May is Cystic Fibrosis Awareness Month

Published about 2 months ago • 2 min read

Cystic Fibrosis Awareness Month

Explore Cystic Fibrosis Awareness with these insightful episodes, featuring personal stories and expert advice, in honor of May's awareness month.

Understanding Cystic Fibrosis

Cystic Fibrosis used to be considered a childhood terminal disease, but with research and improved treatments, the future continues to get brighter for those with CF. This month, Assistant Professor Sarah Allgood joins the podcast to discuss cystic fibrosis causes, treatment, how people manage symptoms, and the future of CF care.

Andrea Hoffman on Life with Cystic Fibrosis During the Pandemic and Beyond

Interview with Andrea Hoffman, a sophomore at Ohio Northern University who lives with cystic fibrosis. Andrea shares her reflections on the pandemic, especially insofar as her pre-pandemic life already required that she take many of the same precautions that Ohioans have had to implement to prevent the spread of COVID-19.

Trikafta and Me

Annaka Haynes is a nursing student who has had Cystic Fibrosis since she was 6 weeks old. Trikafta developed by Vertex Pharmaceuticals was first approved by the FDA on October 21, 2019. This treatment is a triple combination regimen for cystic fibrosis patients starting at ages 2 years and older.

Tips for delivering difficult pediatric diagnoses

“I remember our first day in the cystic fibrosis clinic like it was yesterday. I cried in the parking garage and struggled to nurse my daughter in the waiting room. And then it happened. That moment is forever etched in my mind. The pediatric pulmonologist took my hands, looked me in the eye, and said, ‘Your daughter is going to live a long and full life.’

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Events and Awareness Dates

Upcoming Events

Tech Tour Mental & Brain Health 2024, May 2 - May 3, Carcavelos, Portugal

ATA Nexus 2024, May 5 - May 7, Phoenix AZ, United States

World Congress of Gynecological Endocrinology 2024, May 8 - May 11, Florence, Italy

Vitalis 2024, May 13 - May 16, Gothenburg , Sweden

Radical Health Festival Helsinki, May 22 - May 23, Helsinki , Finland

The Podcast Show 2024, May 22 - May 23, London, England

HIMSS24 Europe, May 29 - May 31, Rome, Italy

ASCO 2024 Annual Meeting, May 31 - June 4, Chicago, IL

May Awareness Events

• National Fibromyalgia Awareness Day - May 12

• National HIV Vaccine Awareness Day - May 18

• National RN Recognition Day - May 6

• World Multiple Sclerosis Day - May 30

• World No Tobacco Day - May 31

• National Nurses Week - May 6-12

• National Stroke Awareness Month

• Melanoma/Skin Cancer Detection and Prevention Month

• Healthy Vision Month

• Cystic Fibrosis Awareness Month

• Celiac Disease Awareness Month

• Brain Tumor Awareness Month

• Asthma and Allergy Awareness Month

• ALS Awareness Month

• Arthritis Awareness Month

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